LINKS

HOME
RYAN'S DIARY
FAMILY
IRELAND 2008
PUBLICITY
CELEBS SUPPORT
SUPPORT
THE LONDON MARATHON 2007
RIDE FOR RYAN
LINKS
HUNTER SYNDROME


Have a look at my friends Oliver and Samuel's web site. It shows what it is like to have a different strain of Hunter Disease and tells their story over the same period as mine. Their Mum and Dad are good friends with mine and they have been a source of great comfort to us.
www.oliverandsamuel.com/

ABOUT THE MPS SOCIETY

Founded in 1982 the MPS Society provides support to those affected by MPS and related diseases.
The aims of the society are
  1. To act as a support network for those affected by MPS and related diseases.
  2. To bring about more public awareness of MPS and related diseases.
  3. To promote and support research into MPS and related diseases.
There are 60 children and adults in the UK diagnosed and living with Hunter disease. For more information on Hunter disease and the work of the MPS Society see www.mpssociety.co.uk

MARTIN HOUSE-

- provides care and support to families in which there is a child or children with a short life expectancy. 
We share with the families the care of the child. This can take the form of symptom control, emergency care, respite care and terminal care, and the care can be provided at Martin House or in the family home. We try to offer flexible care and support to all the family taking account of their background and culture. 
www.martinhouse.org.uk

ROSSETT ACRE SCHOOL

Our school caters for 4-11 year olds and is organised in eleven classes.The school was built in 1970 and has the benefit of two playgrounds and a playing field as well as attractive planting and landscaping. There is also a conservation area within the school grounds. The school has classrooms and is not open-plan but classes do share library and activity areas. There is a computer room and all classes have a timetabled slot in the room. Some classes also have computers in their rooms.

Starlight Children's Foundation-

-brightens the lives of seriously and terminally ill children by granting their wishes and providing hospital entertainment to help take their minds off the pain, fear and isolation of their illness.
www.starlight.org.uk

Click here to find the company that imports Beckham's Buggy.

SPRINGWATER SCHOOL
 

The core purpose of the School is to provide high quality teaching and learning experiences. These will enable pupils to develop the knowledge, skills and personal qualities which will prepare them to lead meaningful and satisfying adult lives.
www.springwater.n-yorks.sch.uk

DREAMS COME TRUE

All children have dreams, but how many get the chance to turn their dream into reality? For every child this would be a magical moment in their lives, but for those suffering from a life-threatening illness or a long-term debilitating condition, it can have an even greater impact.

Each year the Dreams Come True Charity brings a smile to the faces of hundreds of children and young adults between 2 and 21 years who are suffering from a serious or terminal illness. We aim to bring some happiness into their lives, the benefits of which are many and varied for both the children and their families.
 
www.dctc.org.uk

ETHAN'S SITE

Here you can read about Ethan who also has Hunters. Ethan lives in Ireland and was not diagnosed until he was six.

http://www.photoshow.com/watch/TU3qe9VQ